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Diagnosed with Meningioma

Brain Tumor | Last Active: Apr 8, 2023 | Replies (50)

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@cdgspirit

I was recently diagnosed with meningioma it is not cancerous but it
is located between the optic nerve and I took an MRI a few weeks ago
and the last time I spoke to my surgeon he told me he could not remove the whole tumor because it was too close to the optic nerve and blood vessels. I have to be transported to Portland for the surgery
I have an appointment with the surgeon on Sept 8 to go over the new MRI and find out when I will get this done I am very scared and nervous I am 71 years old female and always had good health but my eyes are starting to go blurry when I take off my glasses. any advice?

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Replies to "I was recently diagnosed with meningioma it is not cancerous but it is located between the..."

Hi. I know how your world seems to suddenly disrupted, filled with stress and uncertainty when suddenly told you have a brain tumor. No one really expects that. And considering having surgery is certainly daunting. I could not have surgery but faced the possibility until that conclusion was determined. But I understand your feelings. The three things that helped me cope were: my faith, trust in my Drs, and relaxation supplements w benadryl. But invaluable practical help came a Nurse Navigator from the American Brain Tumor Network, which is a free service. Praying for you.

Have any of the drs suggested Gamma radiation surgery? It doesn't remove the tumor but it stops it from growing. I had it done in 2018 when I was 74 and have had no problems.
Good luck.
Joan

By the way, it's not uncommon that the surgeon does not remove an entire tumor when it's located close to critical structures. That approach is taken when it would create more damage to disturb the tumor at the critical structure than leaving the partial tumor. Since meningiomas grow very slowly most of the time, the outcome for an older person with some residual tumor is very good, per medical statistics, bc we often just outlive the tumor's presence and slow growth. But the specifics of your individual case should be covered to you by your surgeon. When I received my diagnosis, I chose to have a 2nd opinion from another experienced Neurosurgeon. They are often free of charge if it's just a review of your MRI. And no one takes offence by that.

Hello,
I’m sorry to hear that you’re going through this stress! I also had a tumor growing onto my optic nerve. I had a host of health issues going on, as the tumor was a pituitary adenoma, destroying function of the pituitary gland and then impairing my optic nerve. It was only when I had lost all vision in my right eye, that an mri was done and the tumor was discovered. By then it was huge. I had surgery to remove the tumor and afterwards immediately regained some vision back in my eye. The vision is blurry, but still much better than right-eye vision loss. I have also found that my left (good) eye, compensates for the visual deficiencies of the right. I also had gamma knife done a year later, as the tumor was large (macro-adenoma) and any residual tumor is likely to grow. I continue to see a neuro-ophthalmologist yearly and he monitors for any changes, but my eyes have remained stable. As an avid reader, I continue to enjoy reading. Put your trust in your surgeon. This area is their specialty. The body works to heal itself. Give yourself time to recover and try to focus on enjoying life. Good luck!

Diagnosed with meningioma and really need someone to talk to

I was diagnosed with meningioma in May 2022. I took the CT scan to rule out a stroke because the right side of my face was paralysed.( Just a reversal here. I had bells palsy in 2019.)
CT result was a meningioma I did the MRI same result.
To cut to the chase. I had the same location of the meningioma
I am scared to this surgery. Have the same symptoms l am 52 years old

@cdgspirit, how are you doing? What did you learn from the surgeon at your appointment to review the MRI?