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DiscussionAxonal Sensorimotor Polyneuropathy: Looking for someone to relate
Neuropathy | Last Active: Jun 27, 2023 | Replies (27)Comment receiving replies
Replies to "I have been diagnosed with axonal sensorimotor neuropathy and do not understand the difference between this..."
Hi @bvw, You will notice that we merged your post with an existing discussion on the condition so that you could meet @njed @laurask @jimhd and others. If you click the link below, it will take you to the top of the discussion so that you can read what others have shared:
-- Axonal Sensorimotor Polyneuropathy: Looking for someone to relate:
https://connect.mayoclinic.org/discussion/someone-to-relate/
One of the best explanations of diagnosing the different neuropathies in an easy to understand way that I have found is by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.
He also has a YouTube channel that has a lot of great information if you want to learn more about the conditions - https://www.youtube.com/c/MatthewBJensen
bvw - I have been diagnosed by Mayo in MN and Johns Hopkins with idiopathic axonal sensorimotor PN and like yourself, it is confusing to say the least. My dx was in Feb 2020, dealing with this not easy. I've found out that there are many types of neuropathies caused by many different reasons. I'm not in medical field and offer no advise other than just an opinion. I think when the peripheral nerves are impacted, it can cause various problems and many symptoms depend on the cause. The way in which the nerves are damaged and to the degree of damage can also cause different symptoms. In our case, the axons are damaged, and we likely have similar symptoms, perhaps not identical. Our axonal sensorimotor neuropathy is just one of the various types of PN. Some people have just sensory problems and not motor. The Mayo website has some great info on the various types of PN. Always remember, you are not alone in this. I wish you the best and remain as active as you can. It's not easy, I know. Ed