← Return to Post-Covid dizziness/off-balance, as most troubling symptom

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@artistandtwin

I had dizziness with my 11 days of fever with covid. But that dizziness turned into 24/7 vertigo (not episodes of vertigo but constant vertigo) a month after getting covid. The 24/7 vertigo continued for 5 months. During that time, my dr referred me to a physical therapist. My proprioception was so off that I couldn't hold my electric toothbrush without bumping the vibrating brush portion onto my teeth.

I had to hang onto walls so I wouldn't fall. The P.T. gave me eye exercises and I did tons of balance exercises at P.T., twice a week for 3 months.

I couldn't drive or use stairs for 2 months. My husband would drive me to & from work every day. I felt like I was falling out of my chair at work, like the floor was unstable as I walked, like the end of the hallway was "jiggly". I couldn't turn my head from one computer monitor to the other without my head just spinning. And going to bed was the worst. It felt like my head was hanging down when, in fact, my head was up on pillows. I felt like I was going to fall out of bed. I would grab onto my husband or onto the sheets to keep myself from falling.

By my 3rd day of P.T., my P T. and I both knew I needed to see an ENT, but it took a month to get in to see him. When I did, he could see my extremely slow, wide-based, ataxic uncoordinated gait. Yet my ear pressure and hearing tests were 100% normal. He had me follow his finger with my eyes and I believe my nystagmus showed up. Right away, he told me there was nothing he could do to help me, that I needed balance testing and to see a neurologist. I couldn't get in for balance testing for another 6 weeks! And the neurology referrals (to 3 different neurologists) took 3-4 months each! It was crazy.

In the meantime, the eye exercises helped.

When I FINALLY got in to see a neurologist, 6 months after I'd gotten covid & 5 months after my terrible 24/7 vertigo had begun, she immediately wanted to check my ferritin level. She said anything below 50 can cause all sorts of neurological issues. Mine was a little less than 38. So, I began taking 65 mg of iron (ferrous sulfate) every other day and that helped me quite a bit, too.

It's now been almost 13 months since I got covid the first time and I still have vertigo, but at least it's now episodic (whenever I turn my head or move my body). But it's not as debilitating as it was. I can drive and use stairs (when I feel strong enough). Going upstairs is much easier than going down.

My neurologist asked me to walk heel-to-toe 10 months after covid and I couldn't do 2 steps without grabbing onto a wall, so she sent me back for more P.T.

This time, I'll be doing 6 weeks of PT, mostly working on strengthening my legs, my core, and my arms, but some balance work, too.

I hope this was helpful for you. If you haven't had your ferritin checked, do that. Best of luck to you. Keep us posted!

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Thank you!