← Return to Rhabdomyolysis - Long-Term Recovery & Chronic Pain

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@kasb

@alizawerner I realize this post is old, I hope you are still around.
How are you doing now? I'm recovering from what is assumed to be Statin Induced Rhabdomyolysis. I discontinued my meds almost 10 weeks ago. My muscle pain actually increased significantly to unbearable about 3 weeks after I discontinued the Lipitor. Right now I'm able to get out of bed and walk to the bathroom, down the stairs, and cook dinner sometimes if I'm feeling OK but too much movement aggravates the pain. I'm also suffering with Angioedema which could be caused by the statins too. My kidneys were in failure in mid June (GFR 14) but have improved to GFR 40 2 weeks ago.
From what I've researched recovery period is 2-4 months after discontinuing the drug. I'm worried that it is not the end of the road for the Rhabdo. Providers dont seem to know enough to help me understand what I need to do to improve recovery. Any helpful info you can share would be great!

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Replies to "@alizawerner I realize this post is old, I hope you are still around. How are you..."

Hi, same here. I am afraid mine will come back too! I would not wish Rhabdomyolysis on my worst enemy.
Please contact me ot leave a note here.
Thank you, Pat