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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 1:21pm | Replies (445)

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@johnbishop

Hi @spainishlady, Welcome to Connect. You will notice that we moved your post to an existing discussion on the same topic here - PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/. If you click the link it will take you to the beginning of the discussion so that you can read through the posts by other members who have shared their experiences.

I don't have a medical background or training but I have had two occurrences of PMR which is currently in remission since 2018. I was started on 20 mg prednisone for both occurrences by my rheumatologist. The first time it took 3-1/2 years to taper off with the last six months going back and forth between 1 mg and 1/2 mg until I could finally stop taking it with little to no pain on my pain scale. My rheumatologist suggested I keep a daily pain log along with the dosage to track my tapering. He also said I may not be able to taper if my pain was too much based on my own scale not his. I never tapered down if my pain was above a 2 on my pain scale.

My thoughts would be to go back to the last dosage that you felt good at when getting up the next morning and start from there and possible taper with smaller drops in dosage if possible. Generally even if I had a little pain in the morning it would get better after moving around some and taking my next dose of prednisone.

Do you track your pain and the dosage amount?

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Replies to "Hi @spainishlady, Welcome to Connect. You will notice that we moved your post to an existing..."

Hi John ,
Thanks for your reply and confirming what I thought . Go back to the most comfortable dose and yes keeping a log is a great idea . I will speak to my GP tomorrow .