POEM Surgery for Achalasia

Posted by evgenimat @evgenimat, Jan 8, 2018

Hi everyone,
I’ve had achalasia that progressively got worse over the course of three years, to the point where I almost couldn’t eat without throwing up, and drank at least a liter of water with every meal. I just had a POEM surgery done in November (2017) with Dr. Robert Bechara in Kingston, Ontario. I wanted share my experience because, like many people here, before my surgery I scoured the web for hours trying to get an idea of what I should expect. I ended up being very anxious about the surgery, afraid that it wouldn’t work or even make things worse. I now know I fell victim to confirmation bias, since people are much more likely to post a bad experience rather than a good one, and I want to dilute that a bit.
Like many, I was first diagnosed with GERD and took Proton Pump Inhibitors, which obviously didn’t work. After a barium swallow, endoscopy, and mamotomy (ugh), I was correctly diagnosed with Type I achalasia and was lucky enough to be scheduled for POEM only three months later. Dr. Bechara and his staff were incredibly friendly, communicative, and accommodating to the fact that I lived out of province. Dr. Bechara studied in Japan, where the procedure was developed, and had a success rate of 100% from 100 patients that he’d done the operation on. Contrasting to how nervous I was, he seemed to almost be bored. In fact, the day I had my operation, he had another person getting it too. So, he’s a total expert. Do ask your doctor how many operations they’d done and if they had any complications, if nothing else it’ll put your mind at ease.
Three days before the operation I was on a fully liquid diet, which isn’t bad but really drains your energy. All I wanted to do was lay in bed and watch TV, so don’t plan any marathons. The morning of the surgery I was put on IV and right before the surgery I was knocked out and put on anaesthetic. All I remember is the count down, and the next thing I knew I was coming to in the post-op room. At first the anaesthetic was still working so I felt sleepy but great. As it wore off though, I started feeling a pain in my chest. Getting up was out of the question for at least a few hours, but they gave me a fantastic pink numbing liquid (Lidodan 2%) which worked wonders. I was pretty much bedridden for the next three days, and had almost no energy for anything. So take that week off work is my advice.
This pain remained for about three weeks, and, I’ll be honest, it really sucked. At first it was a constant dull pain that inhibited my breadth of movement and would only be subdued by the pink stuff. After about a week the pain became acute, which was worse. I would feel almost totally fine, and then this sharp stab would suddenly come on and I had to lie down wherever I was; always have your pink stuff (or Tylenol) on hand. I thought these was the spasms some people wrote about in blogs and was afraid it wouldn’t go ever away. I definitely had thoughts that this wasn’t worth it, and I should’ve just lived with the swallowing issues rather than inhibiting spasms. BUT, the pink liquid was awesome and it would calm the pain in about 30 minutes, and it did go away after three weeks. It became less and less frequent, and now totally gone. The pain is not that surprising really, they put a 17cm incision inside your body – its gonna hurt. After a week after the surgery I was able to work just fine.
Right now, two months post-surgery, I feel so incredibly grateful that I had the operation done. I can eat all my favourite food not only without throwing up, but with consuming only a small amount of water (often not even necessary). I’ve started feeling thirsty again, can eat until I’m full, and have finally started regaining the weight I’d lost. If you have a chance to do this operation, do it. And I would highly recommend Dr. Bechara if you have the opportunity. Good luck, and don’t give up hope!

Interested in more discussions like this? Go to the Digestive Health Support Group.

@dbgood

How is your recovery? I had the POEM procedure in June 2020.

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I had Poem 4 months ago for Achalasia 3. I’m eating but still cautious. Recently I seem to have to belch and am hoping that isn’t a sign of the procedure not working. Anyone with post poem results etc.

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@candidough47

I had Poem 4 months ago for Achalasia 3. I’m eating but still cautious. Recently I seem to have to belch and am hoping that isn’t a sign of the procedure not working. Anyone with post poem results etc.

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Belching is like a pressure-release valve…it could turn into quiet burping after a few more months. I couldn’t belch/burp for two years before POEM. I developed diverticulum and need a revision. If symptoms don’t improve, or return in a different manner after a few more months, something could be up.

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@candidough47

I had Poem 4 months ago for Achalasia 3. I’m eating but still cautious. Recently I seem to have to belch and am hoping that isn’t a sign of the procedure not working. Anyone with post poem results etc.

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I believe I had a POEM for an esophageal stricture.

And I have 'severe' GERD.

And I belch. Loud and often. EVERYTHING that goes down results in a displacement, usually of air.

Liquids are the worst.

It will be like this the rest of my days.

What I finally got out of the gastro-guy was that in the process of fixing the narrowing of my eso, and the hiatal hernia, the valve between my esophagus and stomach was rendered useless. That valve got the 'incoming' signal and would open to accept new food, and the seal again. Only rarely would it need to open for exhausting air.

Now there is free flow BOTH WAYS. The passage is ALWAYS WIDE OPEN to ANYTHING GOING DOWN, OR COMING BACK UP.

By prescription, I take double the usual omeprazole, and carry Gaviscon© with me EVERYWHERE.

I don't eat. I have a can of Progresso© soup a day and a soft boiled egg most days. Neither have I a tooth in my head. A long story for a different thread and group.

My sitting posture (upright as I can stand) and lying position (on my right side) also make a big differences in what is going on in my gut.

My sitting posture (upright as I can stand) and lying position (on my right side) also make a big differences in what is going on in my gut.

I've dropped from 165 to 135 in the three years this has been going on. The fall was rapid - over only a few months. The POEM was nearing a year ago. Just prior to my procedure there was a snafu with my Cymbalta script that left me un-high and VERY dry for FOUR WEEKS, and I nearly ended up in an ER. Or a morgue. I spent an hour on the PHONE with an WONDER ER nurse who was able to get me calmed down.

I still drink coffee. I know I ought not, but it is my sole 'vice' anymore, now that I am in the state's Medical Marijuana program.

I hope something here is of value.
(=^..^=)
KK

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I appreciate your positive post very very much. I myself had a barium swallow test that suggests a diagnosis of achalasia. I also have all the common symptoms of achalasia and will be having an endoscopy and manometry in May to make sure.
I am new to reading and posting here on Mayo connect and so I have not read any other posts for Acalasia. Could you please tell me what the pink stuff is you were referring to? Are you talking about Pepto-Bismol?

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@fourof5zs

@evgenimat ,
Thank you for sharing your experience. So far ablation is working for me, but I know down the road it will not. It is nice to know of other's experiences. You are correct.. one finds more negative than positive when researching. It is nice to read of a positive outcome. I pray it continues.

Zaroga

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Can you elaborate on the ablation you had, was it for achalasia?

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