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Benign or Malignant IPMN? What to do next?

Pancreatic Cancer | Last Active: Apr 8, 2023 | Replies (79)

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@loribmt

Hi @loklcw First, take a deep breath and let it out slowly. Anxiety over test results can send us into panic mode instantly. We never want to think our body is letting us down.
At 27, the likelihood of you having pancreatic cancer is minimal. Statistically the majority of people who develop that cancer are over the age of 45, with most being well into their 60s.
Having had 4 hepatobiliary specialists review the MRI, blood test results and tell you it’s most likely benign should put you in a fairly high level of comfort that this is nothing to worry about.
With annual MRIs they’ll be able to keep an eye on this fatty cyst to make sure it doesn’t change. You may go through life with this little blemish on your pancreas without every having it change. And it puts you way ahead of the game if it does. Most pancreatic cancers are discovered secondary to other issues. If, and it’s a big IF, you have anything untoward happening there, it can be caught ahead of time and taken care of.

I found some discussions in our Connect forum with other people who have the discovery of IPMN on their pancreas. You might find some of the conversations informative as they share their experiences with the same diagnosis. One of my fellow mentors, Teresa @hopeful33250 has also had an IPMN and writes about it in this reply to @carlz in the discussion group, under 6 Non invasive IPMNs

https://connect.mayoclinic.org/comment/325595/
6 non invasive IPMN
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https://connect.mayoclinic.org/discussion/six-non-invasive-ipmns/

Living with ‘what ifs’ is a quality of life stealer. I think the newness of this discovery will start to fade into the background a little each day as you move forward, realizing you’re a healthy young male and have your life ahead of you to live to its fullest.

How are your original symptoms that lead you to this discovery in the first place? Have your abdominal pains subsided? Did any of the doctors feel this fatty tissue was the cause?

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Replies to "Hi @loklcw First, take a deep breath and let it out slowly. Anxiety over test results..."

Hi Lori,

Thank you so much for your detailed reply, it really did help me out a lot. I know it’s anxiety which driving me crazy now, which stops me from thinking logically.

It’s actually pretty reassuring that all 4 doctors had told me even IF the cyst grow bigger in future, surgery at that time can absolutely cure it and won’t affect my survival rate. I keep telling myself that it’s a benign lesion now, and I still got plenty of time to monitor and treat it, it’s just my over thinking which freaks me out and giving a panic attack everyday.

All my symptoms are not related to this cyst according to all 4 doctors, since it is too small to cause any symptoms. Beside abdominal pain (which later found out that it is actually muscle pain), I’m also experiencing a mild steatorrhea, but the doctors all said it isn’t pancreas issue, so I’m still quite lost on this.