← Return to Benign fasciculation syndrome (BFS)

Discussion

Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

Comment receiving replies
@xaviersymons

I'm new to this discussion, but like everyone here, I've been diagnosed with benign fasciculation syndrome. I don't have time to narrative my long medical journey, but suffice to say it's been the same sort of ordeal that many of you have experienced. For me, I'm most interested in what worked best for people by way of treatment. Second, it seems like there is mounting evidence to suggest that BFS is caused by one or multiple of the Human Herpes Viruses (e.g., HHV6 and HHV7).

I wonder whether we all could get better treatment if medicine new how to better treat these viruses. I would be interested to hear you thoughts. Thanks for hearing me out.

Jump to this post


Replies to "I'm new to this discussion, but like everyone here, I've been diagnosed with benign fasciculation syndrome...."

Hello @xaviersymons and welcome to Mayo Clinic Connect. It is great to have you join to seek out and support other members who are also living with BFS. What you mention about treating viruses is interesting.

Have you done some research in this space?