← Return to Statin Induced Rhabdomyolysis or Myositis Disorder

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@kasb

@marinab - Believe it or not no provider has checked my CK. My PCP should have done that especially in January when I got really sick. Instead he turfed me to my allergist. That's when the Rhabdomyolysis started and my kidney function started to decline. We didnt figure out it was a Statin adverse reaction until mid July. The Nephrologist diagnosed the Rhabdomyolysis/Statin Adverse reaction.. but didn't run a CK. I followed up with my Allergist and asked him to run one but the tech ordered a CK-MB instead of a CK. That was 2 weeks ago. I finally just gave up. Now that I'm off Lipitor the muscle pain is starting to resolve and I'm getting some mobility back so my CK levels are probably going back down. If it flares up again I'll go to a walk in lab and have them run myself.

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Replies to "@marinab - Believe it or not no provider has checked my CK. My PCP should have..."

That's surprising. I though tit was part of the follow up blood test cardiologists do after prescribing statins. - they check lipids, kidney, liver and CK. I would love to go off statins but my cardiologist tells me there is a biiger danger from not controlling my lipids than the likelihood of me developing severe muscle damage. He did say that PCSK9 (injections) was an alternative to statin that would not cause muscle damage, but they are very costly and my insurance company will not cover that cost so I am hoping that between a low dose statin and proper diet will manage my condition satisfactorily. Please keep us posted with your progress.

So sorry! You too!
Same here.,Pat

I had an adverse reaction to rosuvastatin. I was falling down at least once a day and shuffling around. My doctor had just quit the practice. So my next three visits I saw a different PA. I finally told them no I don’t need a steroid shot I need you to run my CK levels. And yep, they were elevated. By that time I had already quit the statin, but this is two months later and I am still not back to my normal self. My legs tire very quickly. I have an appointment next week with a new PCP. I won’t go back on statins. I’ve done enough reading and educated myself that having low LDL is not the holy Grail. I too got on the keto diet and expect my other numbers to get in line.