I have cgvhd of skin and eyes. I had several strokes last fall and had a “res man syndrome” reaction to the vancomycin they gave me. Horrible skin flare and was put on Jakafi and still taking sirolimus and very low dose prednisone. Because of HGB had to lower jakafi to 5 mg daily but it seems to be helping. Also on Cresemba because of a nasty fungal pneumonia that was sensitive to very few meds. Was on fluconazole prior to pneumonia. I am 3 years post transplant. Good luck!