← Return to New to neuropathy, terrified and seeking advice from you guys

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@johnbishop

Welcome @mikeconnors1, There are many causes for neuropathy. I'm not sure if you have done any reading or research on the condition but here are a couple of sites that really helped me early on when I was diagnosed with idiopathic small fiber peripheral neuropathy.

-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

You mentioned going to a place called the stretch zone has helped decrease your pain. There is a discussion on Myofascial Release Therapy (MFR) which has helped others that you might want to read through - https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

There are also other discussions where members have shared there experience with what has helped them.
-- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

Are you able to share a little more about your diagnosis?

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Replies to "Welcome @mikeconnors1, There are many causes for neuropathy. I'm not sure if you have done any..."

@johnbishop Yes he labeled it neuropathy of the extremities (small fiber). Told me it was likely genetic as my dad has it though not nearly as pronounced for him. He feels it only in his feet. Dr offered to find a testing clinic be able to label the exact neuropathy in hopes that progress could be made on a cure. My onset was about 4 years ago but it seems to be getting worse much quicker now. Thank you for the resources I will dive in now. Has any one reported consistently tight muscles in the feet, calves and hamstrings in the forum. It’s odd because once stretched out the symptoms are much better but never feel like I’m fully stretched out so I’m wondering if this is more related to my active exercise routine rather than the neuropathy. Thanks again.