← Return to Looking for Mayo Primary Care patients to help us improve portal

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@seekingsupportjax

Colleen,
Thank you for replying and your support. Unfortunately it's not that I can't navigate portal or need transportation help. It's that the portal prevents effective communication that anyone is held accountable for. Questions are left unanswered for weeks, when I do receive a response I'm always told let me speak with the Dr and get back to you. The follow up call never comes. I understand everyone is busy and overwhelmed. But so are Mayo patients. I'm afraid to use the Office of Patient Experience because I don't want to be dropped by Mayo for complaining. I came to Mayo for a "Comprehensive" approach to epilepsy treatment. New to epilepsy in my 40s and it's been scary. The portal provided me MRI results & Dr notes that increased anxiety and I couldn't get any response about the reports for months. Sorry to vent but truly desperate for care. Yes, please include me if a survey you see appropriate becomes available.

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Replies to "Colleen, Thank you for replying and your support. Unfortunately it's not that I can't navigate portal..."

I encourage you to call the Office of Patient Experience. Your situation is valid. Calling them will not affect your status as a patient at Mayo Clinic. It will help improve care for all. Please feel free to contact me through this form https://connect.mayoclinic.org/contact-a-community-moderator/

On another note, your extensive knowledge and experience with eplilepsy would be very welcome in the Epilepsy group here: https://connect.mayoclinic.org/group/epilepsy-2bb359/