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Neuropathy in Hands

Polymyalgia Rheumatica (PMR) | Last Active: Sep 12, 2022 | Replies (27)

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@connelly

PMR since November 2021. Commenced Prednisolone at 15mg daily, now down to 7mg. PMR, which began conventionally with the girdle joints of shoulders and hips has in the past month descended to my wrists and hands. My symptoms have always been completely symmetrical. I now feel the beginnings of a similar descent of PMR to knees and lower legs. No apparent swelling of hands or wrists. My hands seem to have the same mobility as ever (they were never particularly nimble: I’ve always been a crack-handed typist) and, probably, no reduction in my above average grip strength. The primary manifestation of PMR in my variant of the disease is just pain in tendons and joints. Worst in the morning, declining after a 5am breakfast with Pred and vigorous exercise from 8am. I am male, 82 and before PMR was in excellent physical shape. I manage without painkillers - varied diet, wine with my evening meal. No weight gain with Prednisolone - but slight facial mooning apparent, which is annoying.

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Replies to "PMR since November 2021. Commenced Prednisolone at 15mg daily, now down to 7mg. PMR, which began..."

Welcome @connelly, It sounds like you are doing fairly well with your lifestyle and tapering plan. Mild exercise helped me in the morning when my PMR was active but my body would tell me if I overdid it with the exercise. I had to change my eating habits some after my first bout with PMR so it's good to hear you are already doing OK if you are not gaining any weight.

Do you keep a daily pain log along with the amount of prednisolone you are taking?

On a lighter note, my friends say I look great! The Prednisone has resulted in facial mooning and a reddish rash on my face as well. I looked rather gaunt before diagnosis. So now I am rosy cheeked, filled out, and ready to face the world! I have to look on the brighter side!
I am grateful for the benefits of Prednisone and continue to do all I can to minimize its effects.
Thanks to all of you for sharing what works for you. It has been so helpful.