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@scotiagirl

Hi Brandon, I really hate when doctors imply that anxiety may be the root of a neurological issue when they can't name the condition. It throws it back on the patient that they may somehow be at fault and if you could get the anxiety under control it would go away - here take an antidepressant and go away. They wouldn't say that to a person with Parkinson's or MS, recognized conditions, but seem to feel it's okay to say it when they simply don't know what it is. It makes you second guess yourself. That's unfair and poor medicine.
Now it's true that some conditions can worsen if the person is nervous, Essential Tremor, for instance. I developed symptoms very similar to yours after receiving the Covid vaccine and got little assistance from doctors. I was not anxious or depressed before the symptoms but may have appeared as such after the fact because I was worried about what happening to me and rightly so. Anti-depressants and muscle relaxants did nothing and in fact some of the SSRI's made the fasciculations (the muscle twitching) worse.
I had to go online and find what condition seemed the most similar to what I was experiencing. For me, that was Benign Fascicular Syndrome. I'm not saying that's what you have but you can look it up. The medical world seems to know very little about what causes it, so no cure, and there doesn't seem to be any agreed upon treatment plan, if any. It is a nightmare to have to deal with, with no treatment to ease it. "Benign" is a bit of an insult to anyone who has been tormented by it. Little or no research is being done on this syndrome because, yes, there are more serious conditions out there deserving research.
We are on our own to find what works. I started taking as many vitamins and supplements as I could that are related to nerve health. I'm trying to give my body a fighting chance to heal and hoping, if in my case it was related to an immune reaction to the vaccine, that it may run its course. I hope you find what works for you.

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Replies to "Hi Brandon, I really hate when doctors imply that anxiety may be the root of a..."

Had you ever been on an SSRI before being diagnosed with BFS? They say I have that as well and it's been nearly a year. Some weeks are better than others, but I feel like stress / anxiety does contribute to it. Meditation I believe helps, but certainly doesn't knock it out.

What SSRI did they put you on?