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Anyone else have a Redundant / Tortuous Colon?
Digestive Health | Last Active: 3 days ago | Replies (1026)Comment receiving replies
I have had issues since I was in my early twenties (48 now). I went in many many times for help. I was told I had the flu, was too thin, maybe the edge of my liver was getting pinched? I was made to do an upper GI scope (never lower), HIDA scan, and obviously ultrasound. I was never diagnosed. I even had a two week period where I couldn't eat, was vomiting and could get no provider to listen to me. It wasn't until I went in for my first colonoscopy last month that my surgeon told me I had tortuous bowel. That explains EVERY intestinal issue I had. I wish more doctors considered this being a possible diagnosis and checked for it. Mine is bad enough, she could not complete my colonoscopy, so now I must go in for a CT colonoscopy. Still trying to figure out how to get my guts to work properly, but at least I have a direction to move now!
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I am astonished by the similarities and also see so many people posting on this thread that could be me as far as how they are coping, what they've experienced with doctors and honestly the need to be tenacious to get this diagnosis. I'm 48, also, just diagnosed with tortuous colon a couple weeks ago after 11 months of debilitating and devolving issues with my stomach, digestion, eating, sleep, joints, fatigue. I've also been dealing with this since my late teens and have been hospitalized a few times, blown off and told it was probably food poisoning, stress or a mystery (as in, I'm imagining it). I've spent the last 30 years doing everything I could to eat healthy, exercise, reduce stress. I think my biggest frustration now is that I've always wanted to find a way to heal rather than treat symptoms, but I don't know that's an option anymore. It's good to meet you, not because I'd wish this on anyone, but because it's good to find people who understand and can relate. I hope you get some resolution.