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PMR and exercise: What helps you?

Polymyalgia Rheumatica (PMR) | Last Active: Apr 26 1:16am | Replies (182)

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@denise23

I was diagnosed with PMR in March 2022 and started on 20 mg of Prednisone with good relief until I tried to go from 4 mg to 3 mg last month. I had a major flare with leg and buttock pain waking me in the night as well as severe leg cramps lasting over an hour during the evening. At this same time I was increasing my exercise level to prepare for a trip to Peru. My Rheumatologist increased my dose to 10 during the day and 5 at night and said this would allow me to exercise as I please while on my trip and Ill start tapering again when I get back. I feel upset about my increase but also want to be safe on my trip.
I wasn't aware of the relationship between exercise, PMR and prednisone and was wondering if someone can explain that.
Previous to PMR I was fairly active and in general feel much better when I exercise.

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Replies to "I was diagnosed with PMR in March 2022 and started on 20 mg of Prednisone with..."

Yes, there does seem to be relationship between moderate exercise and increased PMR symptoms with lower doses of prednisone. I guess the explanation is that exercise causes inflammation. I started on 20 mg of prednisone in August of 2021. I had gone 4 months without a diagnosis and had backed my activity level way off due to pain. Suddenly I could do whatever I wanted again: 8-9 mile hikes with 1500 feet of elevation gain, bike rides up steep hills, birding carrying a telescope and gear 3-4 miles. There was no pain and no after-effects. This was true until I got below 10 mg when I began to have increased symptoms with activity. Below 8 mg I really ran into trouble. My rheumatologist told me to hold on 8 mg for awhile. I'm continuing my preferred activities but not hiking and walking as far and slowing everything down. I feel that I need to do this to continue the taper. I am taking a trip next month and will not drop my dose until I get back. If you are like me, 15 mg will allow you to really enjoy your trip!

Hello @denise23, Welcome to Connect. You will notice that we moved your post into an existing discussion on the same topic here - PMR and exercise: What helps you?: https://connect.mayoclinic.org/discussion/pmr-and-exercise/ so that you could connect with @jcaffrey47, @tsc, @cgent, @zaa and others.

The key thing I've learned from my two occurrences of PMR is that exercise is important and I feel better when I get 30 to 60 minutes a day of exercise in but I also have to make sure I don't overdo it. Even though my PMR is in remission, if I do too much exercise, my body lets me know the next day. I have Teeter FreeStep exercise bike that I try to use for 30 to 60 minutes a day along as part of my exercise routine.

The Arthritis-Health site has some good strategies for copying with PMR here: https://www.arthritis-health.com/blog/3-strategies-coping-polymyalgia-rheumatica-pmr

You might also want to keep a daily pain log along with how much prednisone you took that day. I never tapered when it was time unless my pain level was a 1 or 2 on a scale of 1 to 10. Do you keep a daily pain log?

My first bout of PMR occurred fourteen years ago at age 62. At the time, I had decided to intensify my exercise program from a simple walk in the evening to a more vigorous regimen of power walking and stair climbing at the local high school track and football stadium. Not very long after I began this program I was struck by incapacitating pain in my neck, shoulders, hips and legs, which I believed was brought on by the increased exercise. After various doctor visits and months of prednisone treatment, the PMR resolved and I was able to resume a milder exercise program. I remained in remission until 2021, when, after my first Covid vaccination, I experienced a second debilitating flare of PMR and was treated again with prednisone. After months of treatment, I finally achieved remission again and was able to discontinue the prednisone. The rheumatologist's parting advice to me was to avoid intense exercise, especially stair climbing. I am now 76 and have remained in remission from my latest flare for one year. My exercise regime consists of thirty minutes of daily walking at a moderate pace.