← Return to New to neuropathy, terrified and seeking advice from you guys

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@lacy2

....wish I could add something which would be of help but I have p.n.along with other issues (narrow angle glaucoma, previous radiationdamage to pelvis organs), tinnitus-hyperacusis-eustachian tube disfunction-ocular migraines etc. am not saying my pn is worse than others' in fact decide not to take meds when it happened in2016 but it's just on top of other illnesses makes it seem worse. I was given NOFLOX for a simple uti wihtout lab test dr in rush ready to go on vacation; no clean catch for urine etc. and even staff who did the urine test stick let it sit there for ages instead of 2 minutes - but i foolishly took the meds and did not realize that it had a black box warning, for those over 65 etc. etc. How lax of me.... ten days or so after finishing antibiotic walked across bedroom floor and could feel every fibre in carpet in fact hurt; then went to make breakfast and hands tingling and hurt and almost numb.. but i decline medication as so many have sensitivities to and toughing it out as I had read not as bad as many other people with it; but now with eustachian tube pain in ears, pressure in head and bowels, fecal incontinence again from too many antibiotics, ageing and a spray of depression and anxiety, I find it hard to be positive. A rushed prescription from dr., the pharmacist just saying dont take with milk and my not reading the 3 pages of info included with the meds; now I am criticized when i want to check out meds and side effects either from leaflet with meds or internet! Kudos and more to those with positive attitudes with an illness that cannot be cured, but I am not feeling positive about anything I have any more... just giving up and its affecting a previously good 40 yr marriage and relationships with adult children as always complaining about how awful I feel..but its true.

Wish I was stronger and could face my demons. J.

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Replies to "....wish I could add something which would be of help but I have p.n.along with other..."

Hi Valerie
Please don’t give up! Today medicine and healthcare has changed and I am sorry to say not for the good! So many people have had similar experiences that providers are presented with symptoms and they are unable to make a proper diagnosis. Please find another provider, perhaps neurology or rheumatology…..
I find that when my peripheral neuropathy is causing me pain exercise, healthy diet, relaxation techniques and a clear mind by walking through the woods or by a lake really helps me! I also take Gabapentin and it really helps diminish the pain. I understand how bad you feel and you have every right not to be positive, it is hard to be positive when you hurt. My prayers are with you and I hope you find a provider that can help you. Please keep in touch.
Kim