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@suetex

I'm wondering if Low Dose Naltrexone would help you. When I was suffering for 4 yrs waiting for a diagnosis of PMR, I hurt all the time, even when I was laying down trying to sleep. I convince my Rheumy to let me try LDN (I also had Crohn's so had other reasons for trying it) and he provided it. It was wonderful! In two days the non-active pain stopped. I could sleep and it helps with that. I had to stop it when I had my hip replacement- you can't use it with narcotic pain meds. But 3 weeks in, I realized that I hurt all over again and I couldn't wait to get back to it. Anyway, only side effects are vivid dreams which I find a real hoot. Look it up ot is an amazing drug. I take 2 mgs, usual dose goes up to 4.5mgs but I could tell the difference so stuck with 2mg. It also has an anti-inflamatory effect.

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Replies to "I'm wondering if Low Dose Naltrexone would help you. When I was suffering for 4 yrs..."

The most notable indicator of PMR is the fact that basically you wake up one day, literally after having no precursors, and your body is killing you. With my husbands, it started with his left hip never had he had any issues whatsoever. At any time he woke up one day it went from his left tip toes right hip to his left shoulder to his right shoulder to his hands.

It is a stark vast change from what you normally had known before.

Good luck