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← Return to Neuropathy in Hands
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My rheumatologist said PMR does not affect the hands—I never went back to her! —My PMR started in my right hand, with swelling & pain. I lost complete use of my hand—couldn’t hold a knife to chop anything, couldn’t write, hard to get dressed, pain woke me during the night—had no strength in it. My primary doc ordered PT after my PMR diagnosis, found therapist specializing in hands & she was a wonder!! After many months regained strength & use.
Have had PMR since 2019–it had progressed from my hand, to being unable to get out of bed, unable to turn my head—miserable stuff! —Am mobile & functioning—do strength & stretch classes—on anti-inflammatory based eating plan. Currently tapering down Pred—now @ 7.5mg—desperately want off !!—like everyone!!
All the best to you & all who share this journey!!
Replies to "My rheumatologist said PMR does not affect the hands—I never went back to her! —My PMR..."
Thank you for sharing your experience with hand pain and PMR. I am 78 and have had PMR since 2020. Have been on prednisone for 4 years now down to 7 mg. And cannot get lower. I had no hand pain prior to PMR diagnosis and never had hand pain until now 4 years into PMR. I do have osteo arthritis in other places so perhaps it is that. My hand pain is constant no worse in am or pm and no stiffness. My right hand is a bit less painful than the left. I had carpal tunnel surgery in the right hand years ago. Every move of my hands hurts. I don’t know if I had it all along and the prednisone was helping the pain until I got to 7 mg. I will talk to my rheumatologist about it when I see him in May. I have also just recently begun having infections. First a cyst in my back which I had surgically removed in Sept. is now coming back. Then an infection on my chin. Oh the joys of being on prednisone but without it I would not be moving.
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All the way...same thing. I'm hovering between 11, 11.5 and 12. Quality of life counts more than they seem to realize. Pretty sure I've had this since June of 2021, but not diagnosed until Jan. 2022. All I know is, it could be worse and it was for way too long. I wish the best as well. Cheers!