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Complex regional pain syndrome (CRPS) and feeling blank

Chronic Pain | Last Active: Oct 30, 2022 | Replies (70)
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@paulieoneill4979

Wow some road can't imagine the battles I do know that my initial injuries stink to say the least with a trimal ankle fracture and complete shattering of my wrist I have a bit more recovery ahead of me till the bones heal in whatever way they the Dr's say is normal truth is I already walk with a limp foot turns blue have terrible stiffness and too boot I believe the crps was in mynllwer half but I was diagnosed in my upper region of the body because the pain was more severe there now I have to go for another emg ncv for the leg already 1 day at a time im trying to keep positive good luck on your battles my friend

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Replies to "Wow some road can't imagine the battles I do know that my initial injuries stink to..."
Rachel, Volunteer Mentor | @rwinney | Aug 26, 2022

Hi @paulieoneill4979-
This reminded me of you...and your daughter with the Dr. Seuss vibe
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Chuck406 | @chuck406 | Aug 26, 2022

I always say, if I had enemies I wouldn't wish this on them. Battles are won and lost daily but winning the war because I'm still here. I feel for your injuries and this disorder. I had floppy foot for a short duration and when I went to NY they put me in a brace so I didn't trip over my own foot. I went to Google and ran some searches and what came out of that was taking the brace off and pumping my leg up and down to try and regenerate the nerves. It worked, thank God. All my feeling came back and things are good. I do on occasion get tired even these days and ankle goes out. I fall sometimes but have been paying more attention to my body and so whatever I am doing (e.g. mowing the lawn), I stop and come back to it a different day.

I feel for you, EMGs are harsh. I opted for two extra back about 10 years ago in about 6 month intervals because even though painful I needed to know if my peroneal nerve was healing.

You have to keep positive. Don't get me wrong though, during long bouts of flare-ups that last days, sometimes slight weather triggers that end up being a compound in severity of ups and downs and the isolation of darkness, trying to stay positive is very hard. I struggle with it but once weather lets up it's like the grass is green again. Yesterday I purchased on Amazon a chronic pain journal so I can start keeping track for this upcoming doctor but mainly for my pain management doctor so he can see the trends. The chart on there is an hourly line chart. I don't know what rules there are to posting the link but go to Amazon, books, Chronic Pain Tracker and look for Alvin Publishing (May 17, 2021).

Good luck on your battles as well.

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