← Return to New to neuropathy, terrified and seeking advice from you guys

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@julbpat

I love this! When I look around my house, I see many adaptations I’ve made through the years. My cat litter boxes each have a small stool be them, positioned close to something I can grab on to when I stand up. Gardening is done with a stool, and I just bought a long-handled Fiskars pruner. I can lop from a standing position, then go back and pick up the branches on a good day! I just returned from a trip to visit my sons in NYC, which I do several times a year. We talked about the changes I’ve gone through.
All of these things are painful (I have fibromyalgia
AND SFN - doesn’t seem fair). But I have a large arsenal of medications, topical creams, devices (like my ultrasound device), and I realize this is my new life. I told a friend recently “the old Julie is gone. This is me now”.
Today I am contemplating swimming laps. Not something I enjoy, but the only remaining pain- free exercise for me. I know it will lead to increased pain from the waist down later today. I weigh these options every day, and the days of “ pushing myself” are infrequent.

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Replies to "I love this! When I look around my house, I see many adaptations I’ve made through..."

Water aerobics for me is fun. I put on a flotation belt every morning at 7AM and do all kinds of movements that help me deal with the side effects of chemo induced peripheral neuropathy. I hate swimming laps like you. Water aerobics helps greatly with range of motion and builds strength and allows me to get my heart rate up. You don’t have to support your weight in the pool, which is not the case with standing exercise programs. You can find lots of info on water aerobics on the internet.