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Daily random shocks throughout body

Chronic Pain | Last Active: Aug 10, 2023 | Replies (43)

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@sparkmom2

This is an old posting I responded to on another site but the problem may still exist. It does for my daughter. I reached out to Dr Sander who had the program Diagnosis but she is unable to assist at this time. So I turn to general folks who may have similar issues. My daughter has suffered and I do mean suffered with generalized electric shocks in specific and then general parts of her body. she had gone to neuro docs but of course when tests and evaluations come up negative it must be all in her head. Typical answer when a doc doesn't know. She had recently been experiencing a feeling of fire in her face even to the extent she feels her hair is frizzing. She feels like someone has put a hand on her face and is pushing. She can feel or hear the buzz given off by electric lights, she can outline on her face the way the electrical feeling is going. It starts at her ear goes down on the skin alongside her nose then to her jaw {all on the same side} She thought it might be her teeth and perhaps allergy to the new fillings in there, but NO the dentist just looked at her and shook his and her heads. She had tried Gabapentin and Tegretol but the Tegretol just makes her lethargic, forgetful and many of the side effects listed, she has them. She cries frequently because she gets to a point she can't stand the feelings or rather she can't ignore them and gets very upset. I find these symptoms confusing to me and why after MRIs and different medications being tried for what is an obvious neurological issue, she can't get sustained relief. It was suggested Trigeminal neuralgia but not actually confirmed. Of course the symptoms I have related are just the top of the cake and more definitive symptoms and life situations exist. If some of what I have related triggers [pun not intended] similar issues with anyone else please comment and tell if you have been given reasons for this phenomenon so I can pursue more avenues. I must also relate I am a registered profession nurse with a BSN so I have some familiarity with medical situations, but this one is a mystery.

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Replies to "This is an old posting I responded to on another site but the problem may still..."

Hello @sparkmom2, It has to be so terrible to watch your daughter suffering and not being able to find something that provides her relief. You mentioned Trigeminal neuralgia and the symptoms do sound similar. Here's some information on the condition:

"Trigeminal neuralgia is a condition that causes painful sensations similar to an electric shock on one side of the face. This chronic pain condition affects the trigeminal nerve, which carries sensation from your face to your brain."
-- Trigeminal neuralgia - Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/symptoms-causes/syc-20353344

There are a couple of discussions you might find helpful:
-- Trigeminal neuralgia: What helps stop the pain?: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-5/
-- Trigeminal Neuralgia*: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/

I'm sure your daughter has probably seen many doctors. Have you thought about seeking help at a teaching hospital or major health facility like Mayo Clinic?