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Ehlers Danlos Syndrome, MCAS, POTS, and MALS

Bones, Joints & Muscles | Last Active: Mar 12 7:47pm | Replies (32)

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@macrdo

I started using cbd gummies. Has helped me immensely. I'm a hyper Ehlers Danlos sufferer also. Had gastroparisis and found that it was a med gabepentin that was causing most of my issues. I got off it and within 6 months was eating instead of drinking my meals again. You have to be slow about it. Unfortunately our tummies will never work the same as others but it is manageable. It is a struggling battle and very depressing but cbd gummies helping with that also. Alk the tenderness has almost subsided but still is very manageable now. I was in braces from head to toe and now I use none ( it took me a year of slow physical therapy and cons but life is so much more worth living now) Got to be careful tho to get good source as many are fake out there. Be willing to share my info if you would like. God bless you on this horrible journey. Be with you in prayer my fellow sufferer.

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Hi yes any information will be much appreciated. Do you know if EDS causes hypersomnia? My daughter had to go on Concerta to focus in school>
Thankyou! Mary