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Recurring Occipital Neuralgia

Brain & Nervous System | Last Active: Aug 25, 2022 | Replies (18)

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@bustrbrwn22

@anniebrook My severe headache that I've had for 3 months (pain all over face, jawbones, ears, sides of head, occipital region, neck, upper back, even upper arm pain was diagnosed by my Neurologist as whiplash. It hurt to even lie on either side when sleeping because the slighted pressure on my jaw bone on either side caused immense pain. And I'm a side sleeper.

I told her based on what I've read, I thought she would diagnose me with Occipital Neuralgia. The Neurologist told me they are the same thing. Has anyone else heard this?

I am taking muscle relaxers, myofascial therapy, and she recommends a nerve block. I had a plasma rich protein injection and 2 days later, the pain throughout my head is gone (which is huge) but I still have neck and upper shoulder pain.

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Replies to "@anniebrook My severe headache that I've had for 3 months (pain all over face, jawbones, ears,..."

Try accpuncture but don't give up. I have the same kind of pain. Accpuncture seems to help. I get it twice a week it took about 4 months now the pain is leaving gradually.

Ooooo Poor you. Dr's here in BC are not at all 'pro active' I suppose because most of what they could PX is covered by the Government but are too scared to Px it due to cost. When my head/behind ear pain started it seemed to come on with an ear infection and now I get the pain every 6mth or so lasting around 6 weeks so by the time I would get a referral it would be gone. I am seeing a Rhuemoatologist on Monday in Vancouver and I have read great things about him so fingers crossed. I'm sure all mine is 'auto-immine' problems. I'm like you it sounds like because I don't know which end of my body the pain starts and finishes,I sometimes think it's from the hips up and then think "O'h no it's my neck down". When I asked a friend of mine in her 50's was she going to our RMT for back pain she said "O'h I don't have pain I just like the massage" it hit me like a brick "what do you mean you don't have pain" ? then "What's that like"? I'm 69 in Nov so next May 10th I will have had pain for exactly 40yrs,I cannot imagine the joy I would feel to be pain free,better than any lottery win ! Heres wishing pain free for everyone on here.