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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@callalloo

I didn't have either. I did have the OncotypeDX and the "risk of recurrence within 9 years" was 3%. So chemo wasn't recommended. And the only radiation (suggested as 'optional') was extremely site-specific to 'clean up' the area where the tumor was removed. It was described as kind of 'sweeping up crumbs' in that exact area and "could" lower the risk of recurrence in that area from 10% to 3%.

I declined the radiation as the post-surgical biopsy showed clear margins and a sentinel node biopsy was negative. The tumor was in the left breast, so closer to the heart than if in the right breast, which was a factor, and I decided that the risk-reduction payoff for the radiation wasn't persuasive. [My surgeon and oncologist kind of predicted what the OncotypeDX would show based on their combined 60 years of breast cancer experience. If either had strongly argued for the radiation, I might have decided to have it. But I was more worried about unintended consequences like side effects for so small a possible statistical advantage.]

The decisions I made were kind of in line with what a lot of older women, with first-time breast cancers, are making according to my surgeon. The same cancer I had would have been exponentially faster-growing and more aggressive in a younger woman so the decisions would have been different.

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Replies to "I didn't have either. I did have the OncotypeDX and the "risk of recurrence within 9..."

Thank you for this information. I want to get the Oncotype test but I don’t know what it entails. I’ll see what the doctor says but in the meantime I share your thinking about radiation and chemo (especially the chemo). I’ll keep you posted and thank you so much for your support. Really.

Hello @tctredwell1. I read your above post and your situation sounds a lot like mine. My question for you is did you decide to take the pill treatment? I'm 72 years old. My cancer was DCIS Stage 0. My surgeon didn't think it was necessary, didn't give me a choice, that I have the OncotypeDX test so I can't fall back on those results. There is no cancer in my family. It was diagnosed as ER Positive. My concern is the side effects that I have previously read. I'm an active 72 year old and want to enjoy my life for as long as I can, as we all want to of course. Please let me know what you decided to do and I would like to hear how you are doing.

Thank you