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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@kathyomaha55

I even had a lumpectomy when it was just "micro calcifications" - these are pre-cancerous as well. I had one in 2016 - 2 years before being diagnosed with IDC. The Oncotype test is a gene test done on the tissue removed. Mine was 22 - so no chemo.

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Replies to "I even had a lumpectomy when it was just "micro calcifications" - these are pre-cancerous as..."

I too was diagnosed with DCIS with 4 micro-invasions. My surgeon was 99.9% certain that she removed all of it but because the micro-invasions were so close to breaking out of the duct she removed my sentinal Lymph node to be 100% certain. Thank goodness everything was contained in my duct. After my lumpectomy, I underwent 25 rounds of radiation and am now on Tamoxifen for 5 years. I'm 2.5 years in. Is anyone else on Tamoxifen for DCIS by any chance? I'd love to hear from some of you about being on the drug. Thank you! It's nice to finally find a forum for this topic.

Hi, I also have the micro calcifications. I’ve been researching the treatments after surgery. I’m new to this so I hope asking a question won’t be offensive…….
Since you had another type of breast cancer 2 years later, did you have radiation or hormone therapy after having the lumpectomy with the micro calcifications prior to that?
I’m 62 & also thinking about the quality of life these treatments effect. I’m not sure I want to give up 5 years of life feeling like crap because of a med & having additional testing to watch for health issues caused by the side effects.. I already have issues with bone, joint pain (arthritis) I have family history on both sides of heart problems (oldest person to live on my fathers side was 63!) I have low energy daily, thinning hair due to age & I don’t want to risk a worse cancer of the liver or uterus. My mom had Osteoporosis so I may be a candidate for that as well since I’ve never been tested. From what I’ve researched meds would only exasperate what I already deal with daily. With radiation you have to be monitored the rest of your life for heart disease or lung cancer (former smoker for 45 years) since radiation effects last the rest of your life. These problems almost sound scarier than the possibility of a breast cancer returning.