← Return to MCI to Dementia: What can I expect in the future?

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@billchitwood

I kept seeing a decline in my husband. My daughter didn't realize how bad it was until we moved in with her. His kids didn't think anything was wrong as they only saw him for 2 days about once a year. He was very good at 'showtime'. But that can only be managed for short periods of time normally. And people who don't live through it don't normally understand it. I now keep the tribe updated on how he is doing. Some of his first signs of dementia were having problems with technical things - phone, TV remote, computer, etc. He couldn't fake those as easily as forgetting something.
Make sure to find time for yourself (I started Pilates at almost age 82). Find humor wherever possible. This site is wonderful because you can just let go with all the frustrations and everyone understands - been there or headed there.
I have just applied for Phoenix Dial A Ride for Bill (he can't drive and I shouldn't any more so gave up the car). With Dial A Ride I can go with him as he can't go out on his own. Rarely remembers his address any more. I also use Uber when needed.
Socialize - some caregivers commit themselves totally as their loved one demands all their attention. This isn't good for either of you. Bill won't go to family functions and tries to 'guilty' me into not going (is is fine being left alone at this point). This is something he has always done. I have learned to ignore him - I go and have a wonderful time - and ignore his 'silent' punishment when I get home.

Prayers and good thoughts for both of you.

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Replies to "I kept seeing a decline in my husband. My daughter didn't realize how bad it was..."

Hi, @billchitwood You bring up some excellent points about caregiving for sure and I really applaud you for beginning pilates! That is wonderful. I agree with how hard it is for many of those not in contact with our patients to see/understand/accept the declines we see every day. My wife and I had that happen over and over with members of our families. Caregiving is stressful enough without any added burdens. Each of us can only do what we see as our best for our loved ones and that often does not sync with any prescription or view held by others as to how we should be doing it. For instance, in my wife's and my case, I had to devote myself 100% to her needs. While I would have liked to have been able to not have it be so, her brain damage required my constant attention. So the old saying of "different strokes for different folks" is certainly true for us caregivers!

Wishing you continued Strength, Courage, & Peace

I think you just described my life. My husband doesn’t even want to talk on the phone. I think he knows and is afraid he might slip up and they would know he has no idea he talking to.