I've had muscle twitching all over my entire body, 24/7, it never ever stops. Going into 3 years of this insanity I finally have learned to somehow live with this but it's not easy. What is very upsetting to me is that the numerous neurologist and endocrinologist and internal medicine doctors I've seen over the last 3 years with dozens upon dozens upon dozens of tests coming back all negative etc I find it very disheartening that all these doctors just chalk this up to benign fasciculation syndrome and send us on our way with either Xanax or tell us to go on a antidepressant. I'm so tired of this. I do not understand why all these neurologists from around the world are not coming together and trying to figure out what on God's green earth is causing benign the circulation syndrome because there's nothing benign about it, it's never ending and tormenting people like me that try to ignore constant muscle twitching all over! These doctors just send us on our way and I don't see any research going on or neurologist talking to other neurologist trying to find out what is the cause of this. How can all these doctors all these specialists just chalk this up to benign fasciculation syndrome and not get to the root cause of what the heck is causing this. I'm so tired of it and I'm tired of the nonchalant attitude from too many doctors. We need real doctors to put their heads together and scientist as well and find out what has caused every muscle in our body to short-circuit and vibrate and twitch etc non-stop.

I'm just very discouraged and disgusted with the medical community that they just think nothing of giving us this diagnosis of benign fasciculation syndrome because that's an easy way out for them to just tell us oh it's benign and go on your way and just deal with your entire body feeling like it's short circuiting all the time. Until I see neurologist and other doctors getting together along with scientists and trying to find out at least trying to find out what the cause is I'm through with them. Yes they've sent me on my way Yes they told me to live with it but you know what that's not good enough for me. There's got to be some root cause or several root causes for what causes a human body to have every single muscle from head to toe twitch constantly.