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Year Long Progression of Neurological Symptoms. Exhausted. Angry.

Brain & Nervous System | Last Active: Aug 24, 2022 | Replies (33)
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@dbluttenb

You should go look at the symptoms for superficial siderosis caused by internal brain bleed. It can be continuous, or caused by a trauma in your past, up to 30 or 40 years ago. It is very rare with no cure. It is found in a MRI of your brain, but they have to know what they are looking for to find it.

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Replies to "You should go look at the symptoms for superficial siderosis caused by internal brain bleed. It..."
wbblanche | @wbblanche | Aug 24, 2022

Thanks. I searched for causes for 4-5 years, got tired of being told I had BPBV, or whatever they call it, because they couldn’t pinpoint anything else. Did have MRI.
It wears you down, as well as your self-esteem. Mayo was the first place I went for help 10 years ago- they didn’t even know what I was there for, as my doc’s letter mentioned I had neuropathy as well as dizziness and balance issues.
The good news is they decided to look at my heart as there’s a family history. Found a large ascending aortic aneurysm which my cardiologist keeps close track of! Another MRI looking at the brain found sphenoid sinus disease, which eventually spread near the brain, and I was operated on last year for that- I’m sure I would have been in trouble eventually as there are no symptoms until it’s advanced. Had a wonderful doc- it’s a bit complicated up there, and Dr. Lanza is the guy if anyone needs sinus surgery, especially sphenoid.
Keep looking as long as you can find new avenues relating to your symptoms.

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