I’m so sorry. I’m also dealing with it because a rare autoimmune disease that has, and is continuing to, damage my large nerves. My feet and legs are at times a problem, but I have learned to deal with it. Recently, however the nerves in my head have been causing me scalp pain, facial numbness, and vision problems. That indicates that this autoimmune disease is continuing to damage all of my nerves. I’m waiting for an appointment with Mayo Rheumatologist because my community rheumatologist needs help with my treatment. The drug I need messes with my lungs so I don’t know what they can do.
Please try to stay out of the fear of what you might be losing. You are not there yet, and you may surprise yourself…
All the best

@tom01255, I agree with @SusanEllen66. I think a good approach is to research, read and learn as much as you can about your condition and treatments that are available for the symptoms as there really is no cure for neuropathy but there are definitely things that help each of us get through the day (and night!).

Check out this discussion -- Have You Made Any Kind of Peace With Having Your Neuropathy?: https://connect.mayoclinic.org/discussion/have-you-made-any-kind-of-peace-with-having-your-neuropathy/

Hoping you find some relief soon...

You are absolutely right- your future is one of pain, discomfort, and less. But only YOU can choose how to respond to this certainty. Putting aside the medical journey you’ll be on, PN requires changes to daily life.
If your balance is off, you’ll have to adjust what you enjoy to be safe. I can no longer walk the medium-sized dog, as unexpected pulling may knock me off balance and into a fall. So, I walk by myself or if with the dog, another person holds the leash.
I can’t garden anymore with footing on uneven grass/surfaces, so I garden along the house sidewalks, narrow but long beds, from a stool.
You can travel wherever you like, but you’ll need to make adjustments- hiking rugged paths is out, but walking on paved paths and boardwalks, visiting waterfalls with steps and railings, biking on flat “rails to trails” will be fine. A kayak is out, but a canoe with a strong elbow-to-elbow assist from someone for the in and out is fine. I enjoyed a waterpark this summer, with the grandchildren, went on the high tube slides- just told the kid at the top “I need your help” and reached out my arm. I went to the seashore- chose the beach entrance that has heavy rubber mats on the sand, walked to the water with one hand on my daughter’s shoulder. Rented a bike and biked on the Boardwalk.
One last thought about the traveling- the ADA laws have made it so much easier for people using wheelchairs to enjoy travel. Accommodations for wheelchair use really help we with PN- in public bathrooms and in accessible hotel rooms, there are high toilets and grab bars. In local, state, and national parks, there are paved walkways and most often railings on steps, Disneyworld (I’m going in November) has places to sit and rest everywhere- low rock walls, benches, cafes. I’ll need to pace myself for distances, it I’ll be there.
It’s hard to face the “less”, I was a very active person, always on the go, but now I think in terms of that cliche: life throws you curveballs and you can either hit them back as hard as you can or let them smash you in the face. Wishing you the best- maybe start planning a trip!