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Preparing for Post-Covid Care at Mayo Clinic: What do I need to know?
Post-COVID Recovery & COVID-19 | Last Active: Aug 28, 2022 | Replies (12)Comment receiving replies
Hi Rachel, thanks for the feedback! I'm coming in for additional assessment and to hopefully determine the most appropriate treatment plan moving forward. Not feeling nervous at the moment, very eager to figure things out, discover some answers, and move forward. I'd welcome speaking with you further about your experience - thanks for offering! Steve
Replies to "Hi Rachel, thanks for the feedback! I'm coming in for additional assessment and to hopefully determine..."
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@sdykema Hi Steve - Wow, great news that you will soon be headed to Mayo and come up with a game plan! It's definitely something to look forward to and feel positive about given all you've been through.
I used to say that I just wanted a game plan, teach me how to live with what I've got. When I first came to Connect, I was scared about my physical changes and how they were recreating life in a way I didn't want, like loss of job. I was desperate for fixes and solutions about migraines, eye conditions and small fiber neuropathy, etc... I had a plethora of symptoms, beyond what my doctors diagnosed or were able to explain, which effected my central nervous system and peripheral input sensory system. Odd things that did not make sense until I began to understand central sensitization. After a lot of research, I found the attached video on Central Sensitization Syndrome by Dr. Sletten of the Mayo Clinic Pain Rehab Center in FL. He clearly stated what I was experiencing and offered a game plan! Perhaps his video will help you understand more about CSS and how it affects you.
Have a watch...
Post-Covid patients are experiencing central sensitization and have no understanding of why or how to manage. Luckily Mayo offers a post-Covid clinic for long-haulers to help guide patients and make sense of things. Here's a discussion you may want to look through:
- https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/
In addition, all 3 Mayo's offer a Pain Rehabilitation Center like the one Dr. Sletten mentions in his video. I graduated the PRC 3-week program in FL and worked with Dr. Sletten. Here is an overview of the PRC:
- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
PRC was an amazing program and helped me become a new person. I think you'll find similar treatment plans and ideas at your assessment in September. If you are curious about CSS and my PRC journey, here are some discussions you may want to peruse through:
- https://connect.mayoclinic.org/discussion/central-sensitization-please-share-your-stories/
- https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/
Well, Steve, I threw a lot your way, sorry if it was overwhelming. Take your time and be prepared by being your best advocate. September is around the corner! Keep hope alive and think positive, my friend. What questions might you have for me, or other members?