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Failed prep for colonoscopy: What can I do?

Digestive Health | Last Active: May 16 10:35am | Replies (156)

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@michaelh105923

Hello everyone :

This is especially directed at Mayo.

Personally, I suffer from an unknown mystery condition ( in my mind this may be severe anxiety, nervous system issues / endocrine system issues) that seems to be interfering with my digestive tract.

I have gone through colon preps and failed completely - nothing moved at all. In fact it seemed like when I stop eating, my digestive tract stops moving as well. So when I started fasting, I got enormously backed up (no bowel moves after starting fasting) and nothing moved and then even a complicated colon prep failed to do anything. This included an extended treatment with a whole thing of miralax, ducolax and moviprep. X-rays after this failure showed extensive build up in the colon and anus.

All blood work seems normal, but I am convinced there is something seriously wrong.

Who can I work with to succeed in a colon prep in this difficult situation ? Would I be correct that a doctor rather than a gastero person is the place to start ? The gastero people I have spoken to are hung up on Miralax and cannot understand "miralax does not work"

Related note : Miralax does not help, it makes it worse, so I cannot do Miralax for X months before hand - it does nothing.

BTW Mayo refused to see me as a patient -- I would have to look at what I submit and who I submitted to.

Thanks,
Michael Hoffman

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Replies to "Hello everyone : This is especially directed at Mayo. Personally, I suffer from an unknown mystery..."

I am 99 % sure my motility is extremely low.
If we stuck one of those electronic pill things in there, I am sure you would never get it out again 🙂

I don't know how much mayo is involved in this forum, but is it possible to do a colonoscopy with Mayo and let them help me sort out the problems?

Hi Michael and welcome to Mayo Clinic Connect, an online community of patients like you. You are certainly not alone in having difficulty with colonoscopy prep. For this reason, I moved your messages to this existing discussion:
- Failed prep for colonoscopy: What can I do? https://connect.mayoclinic.org/discussion/i-recently-failed-two-preps-for-a-colonoscopy-and-i-cant-imagine/

I did this so you can read past posts that include some helpful suggestions and connect easily with members like @azcyclist2018 @robbinr @mpeters @doolz @astaingegerdm @fourof5zs @asegura.

You may also be interested in these discussions related to motility:
- Having motility issues, may be gastroparesis: Any thoughts? https://connect.mayoclinic.org/discussion/suspect-gastroparisis/
- Is anyone familiar with MOTILITY clinic or doctor? https://connect.mayoclinic.org/discussion/is-anyone-familiar-with-motility-clinic-or-doctor

Have you seen a GI specialists about motility? Have you been diagnosed with a GI condition?