← Return to New to neuropathy, terrified and seeking advice from you guys

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@tom01255

The acceptance part is proving a real challenge for me.

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Replies to "The acceptance part is proving a real challenge for me."

I’m 4 years in and still working on it😊

@tom01255 and @centre, You are not alone with the acceptance for neuropathy. A lot of us have been there.

-- Have You Made Any Kind of Peace With Having Your Neuropathy?: https://connect.mayoclinic.org/discussion/have-you-made-any-kind-of-peace-with-having-your-neuropathy/

It took me finding this group to help me accept things more. The doctors I had only offered pills to help cope, not one had advice (or time to give) on how to achieve maximum quality of life via exercise, supplements, ointments, diets, mindfulness etc. Zero from them! I didn’t know a single person with whatever I have, or friends of friends, and I know a lot of people. I thought I must have been really rare since there weren’t even any local support groups available for me. This group has shown me I’m not alone, and has been teaching me the “how to live with it”. There’s a wealth of knowledge from real experience here from caring people who are willing to share, so we can experiment and find solutions that may help our individual needs. It’s hard for me to completely accept “idiopathic “ and not still hope for a diagnosis (and of course a Cure for Neuropathy period), but I have accepted that I have to live with it and want to live life to the fullest possible for me. I’m willing to work for it; I do need some medicational help, but cannot be dopey as I already have balance issues🙃. This group has been my lifeline, thanks to all of our mentors, and for all of you in this forum who have been helping me!