Small fiber neuropathy - tongue

Hello @tbyjr2022, Welcome to Connect. I just have numbness in the feet and legs with my small fiber neuropathy and haven't heard others with the diagnosis mention symptoms in the tongue area. While we wait for others to find your discussion and share their experience, I did find a couple of related articles that seem to discuss similar symptoms associated with small fiber neuropathy.

"however, she developed a burning and tingling sensation in … a tingling sensation in the
tongue and a crawling feeling of … were negative for large-fiber neuropathy. The skin biopsy was..."
-- Small-Fiber Neuropathy Possibly Associated with COVID-19: https://www.karger.com/Article/Abstract/524205

"… Burning pain or other small fiber-related symptoms may present with a strictly circumscribed
distribution in conditions classified as focal SFN."
-- Non-length-dependent small fiber neuropathy: Not a matter ofstockings and gloves: https://onlinelibrary.wiley.com/doi/epdf/10.1002/mus.27379

Have you had COVID 19 in the past?

Hello!
I've got exactly what you're describing, very dry tongue and mouth, not enough saliva, dental decay and fixing my teeth it's awful, making my mouth so dry while at the dentist!
SFN and this dry mouth for about five years now. And also my taste is very limited, but got used to it.
My neurologist says, could be sjogrens, but haven't got more symptoms, so didn't get more tests to confirm. Just my ANA blood test is positive.

I have tongue issues as well. It is burning and sometimes my lips and gums also burn. I also have dry mouth which could be due to SFN and/or from the medications to treat SFN. It seems this is not a common symptom but I believe it is due to SFN. The gabapentin and duloxetine medication help with the burning sensation throughout the body but they do not help with the burning sensation in my mouth. You are not alone. My dentist recommended I sip water throughout the day and use mouthwash targeted for dry mouth.

I have dry mouth too. I am on Lyrica also known as pregabalin and it causes dry mouth and throat. I have some cough candies that I use to help this problem and of corse sips of water.

I find Walgreen's Mouth Rinse for Dry Mouth works much better than other products. It is sugar free and contains xylitol. I take at bedtime and occasionally during the night.

Amitriptyline is often prescribed for neuropathy and that causes dry mouth and an increase in thirst. Other meds can too. That said I get neuropathy in my tongue at times, usually mild, sometimes severe pain as well. Today just pins and needles on the first inch or so. Have you tried slowly sucking a boiled sweet? And making sure you aren't dehydrated? It wont solve any major issues, but may make you more comfortable in the meantime.

I use oral 7 toothpaste, and gel before bed. The dryness come and go, some days are better than the other. Got used to it I guess.

My diagnosis is geographic tongue( cause unknown). Using ginger based foods, especially ginger teas and ginger candy(Winners) help. Lemon ginger especially soothes my paining oral area. Some foods increase my pain. I’m grateful to be in “remission” now.

I have geographic tongue. When I eliminated gluten from my diet it mostly went away.

My son has geographic tongue and he was told to stay away from any food with acid in it such as spaghetti sauces and orange juice. He no longer has an issue.