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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Good evening @arcticmark, it is nice to meet you on Connect. This is the way I learn.....by reading others' descriptions of their experiences. I note that you feel Gabapentin brings on "extreme fatigue" for you. How much do you take every three hours? I have been using some level of Gabapentin since I was first diagnosed with SFN (small fiber neuropathy) 9 years ago. It may be just me but I don't think that Gabapentin creates fatigue at that level. I actually think the fatigue comes from trying to have a reasonable quality of life while living with constant pain.
Last week, I made an attempt to taper off some of my Gabapentin and replace it with another strain or an increased dosage of medical cannabis. Didn't work. I was just dragging. Even my MFR therapist noticed that I had more fascia tightness as well as pain.
So.....be careful. Everyone is different. And I am dealing with SFN which means that my pain can be and often is all over my body.
Do you use any other medications? How about compression for that leg?
May you be free of suffering and the causes of suffering.
Chris
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Hi
I’m new to this group and new to neuropathy. Mine is a result of intercostal nerve damage as a result of a mistake during surgery a year ago. The entire nerves systems are connected and one can lead to others. I’ve been prescribed for gabapentine for different issues. It’s on my allergy list. My response was awful. Mentally I was a nervous wreck and physically had tremors. I was recently recommended to take gabapenatal. 😳 A related drug. I had a really bad feeling about it. My physical therapist said her friend was on Lyrica, the brand name. She described herself as walking around like a zombie. I’m elevating my feet at night with pillows and use lidocaine topically. Works for me. I wish you luck with Rx. Listen to your body. See if you feel good about the drug. Blessings!