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DiscussionLichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 4 days ago | Replies (323)Comment receiving replies
Replies to "Thanks for including me in this group. I have this condition for the last 10 years...."
@analia, I have had lichen sclerosis for about 10 years. It is awful, no matter what one does to try to help. I see my gynecologist every 2-3 months. She took a specimen to have analyzed and it turned out to be pre-cancerous lesions. I thought it was just the white plaque that happens from time to time. I had to have surgery to remove all of the lesions. That was not pleasant and to aid in my recovery, I had to sit on a sitz bath several times a day. I have piraformis syndrome and sitting on the plastic sitz bath was agony. So, I did a few minutes at a time. Then one morning, I awakened to buckling knees. It did not take a genius to determine that going up and down on the sitz bath was bad for my knees (with bursitis). I immediately stopped using the sitz bath. The outcome of damage to my knees involved injections in each knee and physical therapy. I just finished my 20 sessions of PT and hope to continue my exercises at home. I am doing them along with some videos I have from our local YMCA. They sent a lot to me during the shutdowns. And next week I have a root canal. Oh the things we do to survive. I use Halobetasol twice weekly, Premarin twice weekly and numb with Lidocaine. I previously had a compounded cream, but that stopped working. If your health insurance charges $300 for Premarin, look into Universal Healthcare. It is shipped from Canada for $91. My insurance denied the Lidocaine so I paid $148 for a tube until I discovered GoodRX. Now I get Lidocaine for under $13 for a tube at Hy-Vee grocery store. We learn as we go along, I guess. With all good wishes, @joybringer1