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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Mar 31 2:11pm | Replies (325)
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@ruby460

In 2021 post l5-s1 fusion that was not recovering as expected, a lumber MRI showed arachnoiditis. I have seen the images and as a CT technologist I know what I'm looking at. My issue is that my surgeon refuses to address the finding. He says I'm doing ok and should just keep going. At 62, I worry that there are possible things I should be doing to keep symptoms from worsening. I am very fortunate that I can still function mostly fine. I do have burning pain in my lower buttock area and terrible leg cramping at night. Not sure if associated or not but want to be sure I'm followed properly. Thinking a neurologist or neurosurgeon would be best. Thanks for input.

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Jennifer, Volunteer Mentor | @jenniferhunter | Aug 22, 2022

@ruby460 I also wanted to share this link with you in case you could also have another condition that can cause the similar overlapping symptoms in addition to your spine issues. This is a technical article about Lumbar Plexus Compression Syndrome. There are a lot of good articles on this website written for physical therapists.

https://mskneurology.com/identify-treat-lumbar-plexus-compression-syndrome-lpcs/

Is Lumbar Plexus Compression Syndrome something that you are familiar with? This may be something to discuss up front with your next specialist or explore this with a physical therapist to see if anything can be resolved or to narrow down a diagnosis that is spine related.

How long has it been since your spine surgery? What was the expectation for recovery in this time frame?

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