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Complex regional pain syndrome (CRPS) and feeling blank
Chronic Pain | Last Active: Oct 30, 2022 | Replies (70)Comment receiving replies
Thank you for the kind words yes I am a very strong minded person trying to navigate the Injuries themselves plus the crps has been quite a challenge I have been in therapy for a long time so that helps quite a bit as for agenda today driving from upstate ny to Brooklyn to handle so family stuff its fun being a passenger lol go for my nerve abalation Wednesday at nyu pain management facility elsewise going to try and relax today after this trip I am a big outdoor person so the Catskill mountains are my go to place for meditation and I have a 6 yr daughter as my main source of inspiration she comes to all my pt and ot appointments and cheers me on still have about a year of therapy to go till leg and hand injuries fully heal best they can lost alot of range of motion and muscle mass in leg and hand and well the crps makes it all worse but I am fighting another day and will continue too
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Hi. I truly hope the eblations work for you. I have an injury from work in 2007. Ive had pretty much everything including a fusion ( L4L5) . I've recently discovered that the surgeon hasn't been totally honest in my recovery seeing as there's been notes of multiple mechanical failures that he never told me about. Just told me to keep getting the shots or another surgery. I'm scared and I'm alone. My Dr retired last year and no Dr will give me my hydrocodone back. Now I'm in therapy with a counselor but there's nothing they can really do because I'm too focused on the pain and loss of interest in everything. My rhumotologist is trying to help but that also takes time. I cry every day I have meds to sleep but only get maybe 4 hours. I have been diagnosed with rhumotiod arthritis at 52. I have nothing left to do but keep fighting or just lie in bed. Most days it's bed. I'm going to ask for more PT if they can't give me something for pain aside from gabapentin. They make me jittery and very forgetful but without them I'm totally down. Anyway... sorry......I guess I needed to say all that but mostly..... best of luck to you.
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You're welcome @paulieoneill4979 you deserve kind words.
Hahaha - You found a positive and have enjoyed being a passenger on your trip to the city! Not a bad gig sometimes, huh?
Thank you for sharing that your 6 year old daughter has been your cheerleader and source of inspiration. That is special and I'm sure you very much appreciate her. My kids have done that for me since they were teens and have been my main source of inspiration. I always want to make them proud. On the flip side, I also was my mom's cheerleader when I was 8 after she had a motorcycle accident. Some of what you describe about your injuries take me back to my Mom. Both of her legs were broken and she had severe ankle crushing. She's been through it and is the strongest person I know. Having had that experience, I feel for you and your journey, and see that you are working hard through OT and PT and continuing to persevere on your path forward through rehabilitation and tackling CRPS.
Wow, NYU, great! It sounds like you'll be in good hands at NYU pain management for your radio frequency ablation. Have you already been there for diagnostic nerve block testing?