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Complex regional pain syndrome (CRPS) and feeling blank

Chronic Pain | Last Active: Oct 30, 2022 | Replies (70)

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@rwinney

Yes, @paulieoneill4979 I'm here and happy to help. I see my friend @johnbishop steered you towards CRPS discussions. I'm hoping you will connect with others that have CRPS and learn more about the condition and what tools they use to manage CRPS.

While this sudden onset of life change has thrown you through a loop, you can come out on the other side of that loop. Keep the faith, stay strong, have hope, think positive, use positive self-talk, and open your mind to learn as much as you can about your condition. I know this sounds like a lot to ask, especially this early in your journey, but I get a certain feel from you that you are a person who is strong and will persevere through what life throws at you. Am I right?

Handling pain and coming to terms with a chronic condition that may never go away is a daunting task and takes time. I like to say it takes "a village" if you will, to manage all that is involved from physical, emotional, behavioral and chemical. These 4 pillars are components that can help you manage going forward in the best way possible. But, with all that said, you my friend are going through a lot right now and must remember to take it one day at a time and give yourself grace. For me, sometimes it takes just getting through the next 5 minutes when flares are so intense.

I'm happy you have a good support system, that's important because you can't be expected to go through this alone. I enlisted the help of a cognitive behavioral therapist and a psychologist at various times when I knew I needed extra help to learn how to manage new feelings, emotions and behaviors.

Agitated, yes, I know that feeling. Your body is having tantrums and it stems from your central nervous system gone mad. From my understanding, most CRPS is caused by damage to, or dysfunction of injured peripheral sensory neurons, which then has secondary effects on the spinal cord and brain. Causes include surgery, injury, heart attack, etc.

Have you become familiar with your condition? Here is helpful Mayo Clinic information about CRPS:

https://www.mayoclinic.org/diseases-conditions/crps-complex-regional-pain-syndrome/symptoms-causes/syc-20371151

So, what is on the agenda for today? Any fun or good distraction to keep you out of bed? Do you have pets, children or grandkids? Nature is my ally and I find peace being mindful in my yard or local park listening to the birds, dogs and children in the distance playing. Do you have a calming place to meditate and apply mindfulness for distraction?

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Replies to "Yes, @paulieoneill4979 I'm here and happy to help. I see my friend @johnbishop steered you towards..."

Thank you for the kind words yes I am a very strong minded person trying to navigate the Injuries themselves plus the crps has been quite a challenge I have been in therapy for a long time so that helps quite a bit as for agenda today driving from upstate ny to Brooklyn to handle so family stuff its fun being a passenger lol go for my nerve abalation Wednesday at nyu pain management facility elsewise going to try and relax today after this trip I am a big outdoor person so the Catskill mountains are my go to place for meditation and I have a 6 yr daughter as my main source of inspiration she comes to all my pt and ot appointments and cheers me on still have about a year of therapy to go till leg and hand injuries fully heal best they can lost alot of range of motion and muscle mass in leg and hand and well the crps makes it all worse but I am fighting another day and will continue too