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Neuropathy: Numbness only, no pain

Neuropathy | Last Active: 2 days ago | Replies (508)

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@johnbishop

Welcome @bjt, I'm really glad you found this discussion and hoping that reading through the discussion will provide some helpful suggestions for you small fiber neuropathy without pain. I too found out early that there are no medications that helped me with the numbness. I shared my story in another discussion here along with others:
-- Member Neuropathy Journey Stories: What's Yours?:
https://connect.mayoclinic.org/comment/310341/
I would also share other posts in this discussion by members who may have additional thoughts to share with you on slowing the progression, helping with balance and more.
-- @stefspad -- https://connect.mayoclinic.org/comment/321584/
-- @fiesty76 -- https://connect.mayoclinic.org/comment/321595/
-- @user_che214927 -- https://connect.mayoclinic.org/comment/321598/
-- @afirefly -- https://connect.mayoclinic.org/comment/321609/

You mentioned your neuropathy journey began about 5 or 6 years ago. I think it's good that you are searching for answers. One of the best things going for you is learning as much as you can about your condition and what treatments are available that may help or slow the progression. A couple of sites I've found helpful in case you are not aware of them:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
(eCatalog of Neuropathy topics - https://www.foundationforpn.org/wp-content/uploads/2021/12/11.23.2021-Website-eCatalog.pdf)

You mentioned having Sjogren's Syndrome and other related symptoms. There is another discussion you might also like to read through and meet others with similar symptoms:
-- Sjogren’s Syndrome – Introduce yourself and meet others: https://connect.mayoclinic.org/discussion/sjogrens/

Do you mind sharing what your most bothersome symptoms are?

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Replies to "Welcome @bjt, I'm really glad you found this discussion and hoping that reading through the discussion..."

Thank you for all the great info.
My most bothersome symptoms include:
*Progression
*Loss of balance
*Relationship to Sjogrens concern