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Neuropathy: Numbness only, no pain
Neuropathy | Last Active: 2 days ago | Replies (508)Comment receiving replies
Good Evening!
I am new here, although I have been up to Mayo a few times over the years. I too have small fiber neuropathy with numbness, but no pain. Some tingling at times too. My journey has been over the last 5-6 years. I was pretty healthy and things began changing then. Eventually, it was determined I had Sjogrens Disease which has caused SF neuropathy, dry eyes and mouth, autonomic dysfunction, fiber myalgia, and may have triggered a smoldering multiple myeloma recently too. I am overwhelmed! Focusing on my small fiber neuropathy, I am interested in any special treatment, or medication that might slow progression down. I was treated with hydroxychloroquine first, and I could not take it and then methotrexate which did nothing for the numbness. Not doing much for it now. I walk barefoot in the house because I can better feel my feet. Maybe that is a problem? And I have some balance issues when walking on grass, stones or uneven ground. Are there any good suggestions for me? And I too fear the progression affecting my ability to walk or drive in the future!
Replies to "Good Evening! I am new here, although I have been up to Mayo a few times..."
There is a separate link for supplements that treat neuropathy.
https://connect.mayoclinic.org/discussion/supplement-recommendations-can-help/?pg=7#comment-739846
Hope this thread helps.
What is Sjogrens Disease?
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Welcome @bjt, I'm really glad you found this discussion and hoping that reading through the discussion will provide some helpful suggestions for you small fiber neuropathy without pain. I too found out early that there are no medications that helped me with the numbness. I shared my story in another discussion here along with others:
-- Member Neuropathy Journey Stories: What's Yours?:
https://connect.mayoclinic.org/comment/310341/
I would also share other posts in this discussion by members who may have additional thoughts to share with you on slowing the progression, helping with balance and more.
-- @stefspad -- https://connect.mayoclinic.org/comment/321584/
-- @fiesty76 -- https://connect.mayoclinic.org/comment/321595/
-- @user_che214927 -- https://connect.mayoclinic.org/comment/321598/
-- @afirefly -- https://connect.mayoclinic.org/comment/321609/
You mentioned your neuropathy journey began about 5 or 6 years ago. I think it's good that you are searching for answers. One of the best things going for you is learning as much as you can about your condition and what treatments are available that may help or slow the progression. A couple of sites I've found helpful in case you are not aware of them:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
(eCatalog of Neuropathy topics - https://www.foundationforpn.org/wp-content/uploads/2021/12/11.23.2021-Website-eCatalog.pdf)
You mentioned having Sjogren's Syndrome and other related symptoms. There is another discussion you might also like to read through and meet others with similar symptoms:
-- Sjogren’s Syndrome – Introduce yourself and meet others: https://connect.mayoclinic.org/discussion/sjogrens/
Do you mind sharing what your most bothersome symptoms are?