Hello @tom123x and welcome to Mayo Clinic Connect. A couple of things you've shared about different patient notes and lack of follow up seem to point to some increasing distrust and uncertainty around the care you may be receiving. It would for me too.

I think at this point, I would seek a second opinion at a different hospital to bring some clarity to the situation and allow you to pursue the best possible care you can get. If that happens to include your interest in a second opinion at Mayo Clinic in Jacksonville, you may use this link to get started: http://mayocl.in/1mtmR63

Do you have family and/or friends that feel you are at the point of needing to consider a second opinion as well?