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Complex regional pain syndrome (CRPS) and feeling blank
Chronic Pain | Last Active: Oct 30, 2022 | Replies (70)Comment receiving replies
Hi Rachel thanks for the response so good to know someone is out there yes I was lucky I guess to pay attention early on to my body and my team sent me for emg ncv testing and diagnosed it early on these injuries changed my life I take 1800mg of gabapentin and I believe it helps keep the rawrrrrrr pain down as for what I do to help the pain I have yet to figure that out fully a little music or a good show helps a bit I've recently started getting the burning in my right leg and hip which has kind of thrown me for a loop im going to do another emg to see if in fact the crps is or has been there as well the whole time I had a flare up today that had me in bed the whole day clamy hands even sound of door opening and closing had me agitated
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Yes, @paulieoneill4979 I'm here and happy to help. I see my friend @johnbishop steered you towards CRPS discussions. I'm hoping you will connect with others that have CRPS and learn more about the condition and what tools they use to manage CRPS.
While this sudden onset of life change has thrown you through a loop, you can come out on the other side of that loop. Keep the faith, stay strong, have hope, think positive, use positive self-talk, and open your mind to learn as much as you can about your condition. I know this sounds like a lot to ask, especially this early in your journey, but I get a certain feel from you that you are a person who is strong and will persevere through what life throws at you. Am I right?
Handling pain and coming to terms with a chronic condition that may never go away is a daunting task and takes time. I like to say it takes "a village" if you will, to manage all that is involved from physical, emotional, behavioral and chemical. These 4 pillars are components that can help you manage going forward in the best way possible. But, with all that said, you my friend are going through a lot right now and must remember to take it one day at a time and give yourself grace. For me, sometimes it takes just getting through the next 5 minutes when flares are so intense.
I'm happy you have a good support system, that's important because you can't be expected to go through this alone. I enlisted the help of a cognitive behavioral therapist and a psychologist at various times when I knew I needed extra help to learn how to manage new feelings, emotions and behaviors.
Agitated, yes, I know that feeling. Your body is having tantrums and it stems from your central nervous system gone mad. From my understanding, most CRPS is caused by damage to, or dysfunction of injured peripheral sensory neurons, which then has secondary effects on the spinal cord and brain. Causes include surgery, injury, heart attack, etc.
Have you become familiar with your condition? Here is helpful Mayo Clinic information about CRPS:
https://www.mayoclinic.org/diseases-conditions/crps-complex-regional-pain-syndrome/symptoms-causes/syc-20371151So, what is on the agenda for today? Any fun or good distraction to keep you out of bed? Do you have pets, children or grandkids? Nature is my ally and I find peace being mindful in my yard or local park listening to the birds, dogs and children in the distance playing. Do you have a calming place to meditate and apply mindfulness for distraction?