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Complex regional pain syndrome (CRPS) and feeling blank
Chronic Pain | Last Active: Oct 30, 2022 | Replies (70)Comment receiving replies
Hello @paulieoneill4979, welcome. Feeling blank...boy, have I felt blank before. As a matter of fact, that feeling is what lead me to Connect. I'm so sorry you've ended up with CRPS after ankle surgery this past January. Your doctor seemed to diagnose CRPS rather quick which is good.
You may not know what Gabapentin is actually doing for you unless you were no longer taking it. I have to believe it's helping and perhaps your dose can increase. It sounds like you and your doctor have a solid plan to try injections and possibly ablations. Those treatments really do work for some folks so there is hope for you.
I truly understand how lost you feel and am sorry. I've fealt the same throughout my journey of chronic pain conditions when the worse types of nerve, muscle and joint pains overwhelmed me. Luckily you know what you have so you can tackle it head on, which you are doing.
How do you keep your mind distracted when your having pain flares? I put on a movie, music, or talk to someone in my family. Do you have a support system to help you through these difficult times?
Replies to "Hello @paulieoneill4979, welcome. Feeling blank...boy, have I felt blank before. As a matter of fact, that..."
Ketamine is the best first thing to try. Please dont let them cut on you. It's way way too soon for such radical treatment. Ketamine has good results in very early treatment. Cutting on us can easily cause more spread. Yes, things can get worse than they are.
Pain doctors seem to want to do spinal cord stimulators right away even on young people these days. Don't let them cut on you. Get a second and third opinion from a specialist anywhere in the country, please.
"I feel blank" are words I use all the time.
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Hi Rachel thanks for the response so good to know someone is out there yes I was lucky I guess to pay attention early on to my body and my team sent me for emg ncv testing and diagnosed it early on these injuries changed my life I take 1800mg of gabapentin and I believe it helps keep the rawrrrrrr pain down as for what I do to help the pain I have yet to figure that out fully a little music or a good show helps a bit I've recently started getting the burning in my right leg and hip which has kind of thrown me for a loop im going to do another emg to see if in fact the crps is or has been there as well the whole time I had a flare up today that had me in bed the whole day clamy hands even sound of door opening and closing had me agitated