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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: 4 hours ago | Replies (1107)Comment receiving replies
Thank you so much for your comments re Actonel. I took it for 8 years until a new doctor said I should have stopped at 5 years for a drug holiday. Discouraged, I never got back on anything and didn't have a DEXA as I wasn't ready for another drug. Obviously a big mistake! Other health issues took the focus off my bone health.
Now my bone density is seriously low: spine -5.2, femoral neck -4.4 and total hip -4.5, but luckily have yet to break a bone despite a few significant falls. Perhaps the Actonel did something but did not build bone. I have discussed my situation with my PCP, endocrinologists, and an endocrine surgeon (I have mild hyperparathyroidism). Surgeon offered surgery because of my bone condition but not sure it's worth the risk at age 76. I am grateful for the time and professional input of these doctors, but am frozen when it comes to making this decision as heart attack and stroke run in my family. I've had a cardiac ablation and am fortunate that it has normalized my heart function. I worry that introducing one of the anabolic drugs will upset that progress or introduce something worse. I know many of you have struggled with this decision and am grateful for your input. In the meantime I'll keep exercising and eating well and try to summon the courage to act.
Please share your "serious side effects," so I might assess if I can handle them. I'd especially like to know if dizziness and rapid heart beat are among the serious.
Thank you again.
Replies to "Thank you so much for your comments re Actonel. I took it for 8 years until..."
Studies on eating dried plums have shown results of not losing more bone and gaining some. I eat 6 throughout the day and hope it will help my bone density which is currently at -4.1. I am also on Prolia and take Vitamin K2 MK7. Perhaps the prunes and Vitamin K2 will help. (Unless you are on Coumadin or Warfarin.) You can't take K2 if you are.
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One other variable that would be good to know is overall bone strength. If your doctor(s) are using some of the newer technology that looks beyond bone density at bone strength and bone health, there might be some reassuring data. And they can reconsider the best options for you personally.
The positive thing about knowing possible side effects is that the patient and doctor can be aware of any early indications if they're on the wrong path. I worry more about the side effects that aren't yet known about. The osteoporosis drugs get a lot of attention from women determined to make informed decisions and sharing what they learn so, to that extent, there are fewer surprises with these drugs than a lot of other drugs.