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Multiple autoimmune conditions and too many meds
Autoimmune Diseases | Last Active: Aug 29, 2022 | Replies (13)Comment receiving replies
@t2swim09 You certainly do have quite a bit to contend with! And, no wonder you’re upset with the number of pills you take. You say that you’re having difficulty swallowing and now take only fluids. Have you seen a gastroenterologist for a swallow evaluation? That might be the best place to start before you loose any more weight.
Have you thought about going to The Mayo Clinic? They are located in Rochester, MN; Jacksonville, FL; and Tucson, AZ. Here is a link. Talk with your doctor and get her to help with a referral.
https://MayoClinicConnect.in/1mtmR63
There are also hospitals in the country that specialize in rheumatology.
https://health.usnews.com/best-hospitals/rankings/rheumatology.
Do you think you could peruse these suggestions?
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I am also under the care of a new(er) GI and they are running tests.
I had an uncle pass from ALS on my father's side and 2 other siblings of his that had swallowing problems most of their life that went undiagnosed, both have passed from cancer.
I also dee an oncologist for my clotting disorder so I hope maybe he'll get more involved with the bigger picture.
Yes I would be open to going to Mayo.
I was referred to a Dr at Cedar Sinai and I didn't even get to finish my paper work and she came out and apologized telling me my case was too complicated for her?!
Then John's Hopkins but they would only look at CSF and when they realized I couldn't be shunted, they was it for them.