Good afternoon @dianeee, thank you for responding to my post. Do you think your evidence of neuropathy is a result of your chemo treatments? Many of the folks with neuropathy have undergone treatment for cancer.

Actually, I want to let you know about my experience with Gabapentin which began in 2013….with my diagnosis of SFN (small fiber neuropathy). The first Rx was for mornings and I did not do well with that time of day. A bit fuzzy and unsure of my solidarity. So….my neurologist changed it to bedtime, telling me that Gabapentin can stay with you until about noon the next day. That worked well.

Several years later I began to start my day with Duloxetine which has been my constant anti-anxiety companion for years. I chose to taper off half of my Gabapentin dosage and that also worked well. I did notice that if I forgot my nighttime Gabapentin, I paid the price the next day with a heaviness and pain especially in my legs.

Just last Monday…..I wanted to try to be free of Gabapentin again because I didn’t think I needed it any more. I decided to do a slow taper off of that medication. Boy was I wrong. Even my MFR therapist said that my extensively greater level of pain was because I had deleted one of my 300 mg Gabapentin pills. According to her, she learned that 75% of improvement with neuropathy comes from the medications we choose to take and 25% from therapies e.g. acupuncture and other treatment options.

So…..last night I started Gabapentin again and guess what????? As soon as I sign off and say goodbye to you for today……I will head to the river to walk and do my stretch yoga exercises. Today I actually feel like doing that again.

Not everyone will have the same story because we all react so differently to medications. Just make sure you are no passing up an opportunity to allelviate some of the symptoms you are currently experiencing.

Let me know if you have other questions. I am anxious to know of your decision and how you choose to tackle those tingling, burning, and numbness symptoms with which you are currently dealing.

May you be free of suffering and the causes of suffering.

Chris

I have been taking Gabapentin (300mg nightly) for 6-9 (?) months and it does help, but not nearly enough. I do still have significant pain with Gabapentin.

Because of this, I also take CBD/THC gummies to help. When I do (daily), the pain is suppressed significantly (not entirely, but enough that I am no longer in tears). I can function. Mind you, I cannot drive due to the neuropathy, but I am not in "I'm on fire" mode.

I'm taking the brand "five" and it contains 25mg CBD and 2mg THC, and I take it before bedtime and as needed during the day. It helps A LOT.

You can purchase higher doses, but I wanted to start with the lowest dose to see if that could help me and it has. Here is the link. I hope this helps!