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What's your experience with Orgovyx (relugolix)?
Prostate Cancer | Last Active: Nov 8 3:43pm | Replies (171)Comment receiving replies
Glad it worked for you...I could not think or work or make decisions and after trying every other day for a week and a half...intense heart pounding (with aneurysm that is Russian Roulette) so it is not for everyone---their own paperwork inside the package lists 9 men dying out of 332 ~ from heart attacks
Replies to "Glad it worked for you...I could not think or work or make decisions and after trying..."
As a GmRH antagonist, the cardiac profile of Orgovyx is superior to that of the agonists.
All testosterone lowering drugs, and orchiectomy, can cause cardiac issues.
I am glad you were not on a long term injection of Lupron. That would have been very problematic! At least Orgovyx is quickly cleared.
With a Gleason 9, you do need to be on some type of ADT. Perhaps your solution will be to take estrogen with it, and that may balance the side effects.
Ii think you need to find the best center that specializes in prostate cancer. Mayo in Rochester is top notch if you can get there.
You need to work with a team that knows how to handle your complex situation.
Best of luck to you!
I have decided not to take orgovyx I think the bad side effects far outweigh the advantages… I’m hoping to just get radiation treatment….
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Also... can NOT find how to tell FDA