Connect
← Return to Undiagnosed for nearly 4 years: nausea and upper abdominal pain, weak
Discussion
Undiagnosed for nearly 4 years: nausea and upper abdominal pain, weak
Digestive Health | Last Active: Aug 19, 2025 | Replies (54)Comment receiving replies
@sandy1234 - It seems so frustrating dealing with NHS.
My daughter lives in Sweden and gets the same lack of interest from the medical community.
You mentioned findings on a recent pillcam - healing ulcers and lymphangiectasia. Those are important findings for once.
The doctor can not just “ think” that it’s not causing problems, it has to be proven. Also, why have you had ulcers?
You need to see a top GI doctor to review all of your records. I’m pretty sure that you should be able to have that happen. Is there a patient service office at NHS where you can request that? All of your records should be included.
Another question- you are young and have been bed bound for 4 years- who is supporting you? Do you get government stipends? I would think that you would have to have a real diagnosis to collect government aid?
Replies to "@sandy1234 - It seems so frustrating dealing with NHS. My daughter lives in Sweden and gets..."
Connect
Well this was myself and my parents initial thoughts when the results of the pilcam came back through the post. I wasn't given a consultation so had no doctor to speak to about the results, but looking at the ulcers and lymphangiectasia we assumed this was important. However, after complaining to get further investigation, a letter was sent stating that it's a common finding and wouldn't be causing my symptoms and needed no further investigation.
What I don't understand also is that when I had a barium meal and an ultrasound, which was probably 2 years prior to the pilcam, the lymphangiectasia didn't show up on those?
As far as support, I still live with my parents and they support and care for me. It's literally tearing my whole family apart seeing me so ill, but we're getting no further towards getting a diagnosis. Also, yes, I have been turned down for disability benefits multiple times over the years, as I don't have a diagnosis.