I’ve been taking 60mg of prednisone.
My Rheumatologist and I are going back to square one.
I was diagnosed in 2015 with Polyarthritis Nodosa PAN, a rare Vasculitis. That damaged my nerves so I have peripheral neuropathy.
She believes that the PAN has now possibly damaged my cranial nerves.
So, I don’t have GCA. It’s probably “just” the lethal PAN causing the trouble.
Unfortunately, the best treatment for my PAN is Rituxan, and that affects my lungs…
Thanks for your thoughts.

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